Page 2 - September 2015 newsletter
P. 2

Continued from page 1
move around independently with the help of a frame.
We even managed to get him to various sports events or
school events the girls were in, each of which lifted him no end.
The girls and I also had one-to-one support from the Hospice’s
Childrens’ and Supportive Care teams,
which was a great help. Paul was so stoical but towards the end, it was the district nurse who suggested it was time to get some extra help. Paul was really nervous, but we got into his room at the Hospice, the doctors came and spent time with him and by the end of the day, I could see him visibly relax.
“The Hospice became his home from home.”
He was so comfortable being there, and
to him and to all of us, that was really important. The care was beyond anything we’d experienced. After two days, I arrived in the morning to find him euphoric. He’d slept all night and woken up pain-free for the first time in months.
We shared precious moments like all of us having ice cream in his room together and Cordelia appearing on a pony on the patio outside his window. “Hi Daddy!” she called from her saddle. Paul was in seventh heaven – he adored his girls. I’d go up and see him every day and sit by his bed on a comfy chair or on the bed next to him. The girls took time off school and we’d sit happily with him for hours on the patio, playing silly games, having a sandwich or doing a crossword.
I hadn’t realized I could stay over but for the last six or seven nights I did - the girls always said they wanted me to be with Paul. The nurses gave me a camp bed the same height as his and we’d go to sleep holding hands as though we were in a double bed together.
Just 17 days after he was admitted, on 22 June this year, Paul passed away peacefully with me by his side. We miss him more than words can say and life will never be the same without him, but I can never thank the Hospice enough for providing such fantastic care for Paul and for continuing to provide support for families like ours, and through events like the Mud Pack Challenge, allowing us to maintain the bond that we all feel so strongly.”
Meet Annalie and Hannah
Macmillan Wellbeing and Therapeutic Services co-ordinators
Q. What is your role, how does your job fit into the Hospice?
AAnnalie: Our role is Macmillan Wellbeing and Therapeutic Services co-ordinator; however, this is quite a broad title. Hannah and I have found
the title ‘creative therapist’ translates a little easier. Our service aims to provide holistic support to patients and families at both The Hospice of St Francis and The Peace Hospice, using a wide range of creative initiatives, from workshops to art psychotherapy to creative writing groups. We will also be doing large scale community engagement projects such as art bags.
Q. What made you want to work at HOSF?
AHannah: I wanted to work for Peace, The Hospice of St Francis and Macmillan as they all provide very different, unique and high quality care, I wanted to be part of a new project that combines each service in one united aim and increases the use of arts in healthcare settings.
Q. What will success look like for you / what Ais your vision?
Annalie: I really hope that one
day the importance of someone’s wellbeing, their creative, emotional, psychological and spiritual needs are seen as equal to their physical needs and that we treat the mind with as much care and value as the body.
Hannah: Engagement in the arts offers people a chance to discover or re-discover new aspects of their identities, to explore meaning within themselves and with others, to communicate in different ways, and to enjoy themselves.
Q. What are you most Alooking forward to?
Annalie: I am looking forward to
doing something new, meeting new people, especially working with a team of skilled, enthusiastic volunteers, who all have similar interests to me.
Hannah: This is a big job with many challenges, and I love a challenge! I’m really enjoying working with Annalie, my colleagues and the wider staff teams on both sites, and spending time with patients and carers . This is also my
first job following maternity leave -
I’m gradually finding the balance between my work self and my mum self, and I’m enjoying both aspects enormously.
Q. Tell us one thing about yourself that would surprise us?
Hannah: I used to be a glassblower... not sure if that’s surprising, really!
Q. How can the readers
of the newsletter help you?
AAnnalie: Readers can help us by getting involved in our art bags project. This year it is a weaving activity, with each bag containing everything you need to get started. We hope to have them ready and out in early September. Anyone can get involved and do an art bag - they can be found at either site.
Find us on Facebook for more information at
Annalie: I am a massive whale
enthusiast, I absolutely love them!
I have been a member of the Whale and Dolphin Conservation Society for 18 years after seeing killer whales in the wild in Vancouver. I jump at any opportunity to see whales in the sea and am extremely passionate about whale conservation!
p2 The Midnight Walk raised £67,000 – thank you!
Paul in his Hospice bed, with Eleanor and Freya at his side

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